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Keeping the Resource Directory Updated
We encourage our users and members to help us improve this directory. Please submit any resources that are relevant or helpful to us to include in this directory. Click on the submit button and provide the address of the resource, a short description of it and keywords to assist others in locating the suggested resources. Additions are subject to approval by Region 4 staff and will be added upon approval. Please email with any questions.

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All newborns will receive state-of-the-art newborn screening and follow-up; children and youth with heritable disorders will have access to genetic expertise and coordinated care in the context of a medical home.

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